'Rhabdomyosarcoma'

Dr. Kuttesch, to his everlasting credit, called us around 7 on Friday night, 3/14. He had received the initial path report. He said Adam had something called Rhabdomyosarcoma. This is a soft tissue tumor found not uncommonly in the orbital sockets. Dr. Kuttesch specializes in these kinds of tumors. He also said that the surgery really had gone as well as it could have and according to Dr. Mawn's notes she had done a 'Gross Total Resection' meaning that from what she could tell she got the whole thing out.

Even so Adam will have to undergo chemo but according to Dr. K the gross total resection indicates that as long as his total body scan and MRI come back clean the chemo will be less intensive.

The next steps for Adam is to get his scans next week, visit with Dr. K's colleague Dr. Collier, and then to go back into surgery to get a bone marrow sample and inplant a 'central line' into his chest where the chemo medicine will be injected.

Martha thought that we should do something fun with Adam next weekend: we may go to Lego Land in San Diego. Adam would love it.

Camille is going down to stay with Juju and Bear for the next week or so. She knows her brother had surgery but is blissfully unaware of all the other mess. She will have a blast with Juju and Bear....as long as they can keep up.

Adam's best friend Antonio is coming to spend the night. Adam went to his soccer practice yesterday, despite his eye still being a little tender, but his game has been rained out. We want to give Adam a chance to do as many normal things as possible.

His school, Meigs Magnet, has been great about getting him his work and helping us understand how to set him up in Homebound. The principal and the teachers obviously care about Adam and we really appreciate their concern.